Matthew still has balance issues, but is getting much better. It gets worse as he gets tired, and he seems to have problems in new area. We are still having problems getting him to eat. Sometimes he is not interested, sometimes he gags when he eats, and sometimes he gags when we show him food. He is now 22 months and weighs 21 lbs.
3 comments:
Hi, my name is Sarah and my son also has Rhombencephalosynapsis. Could you please email me at nowittyname4me at yahoo dot com. I was wondering if we could swap some information about our little guys. Thank you.
Hi I am Cassandra. My daughter Kindrid has the same condition. I have built the Rooms Of Jade website for this condition. RoomsOfJade.com
Matt is super cute! He needs to be on the cover of baby magazines.
I will add a link of your blog to mine.
Hope to hear from you soon :)
Cassandra
Hey that’s me
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